Improving support services for families affected by r(20) syndrome
Improving support services for families affected by r(20) syndrome - Prosiect
Trosolwg o'r prosiect
The organisation will use the funding to organise a conference bringing together families living with a rare genetic condition with researchers, health and care professionals. This will strengthen the community by creating a peer support network amongst families affected by the condition, and improved health and wellbeing by raising awareness of the condition and its treatment amongst relevant professionals and the general public.